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If you have any questions about the study that we haven't answered on this website, please email: Dr Siobhan O'Dwyer or Dr Anna Sansom

SURVEY NOW OPEN FOR PARENT CARERS TO SHARE THEIR EXPERIENCES

Anna Sansom • October 19, 2021

Have you completed our national survey of parent carers?

If you care for a child with a disability or long-term illness, your input could help us develop better support for carers in crisis. The research is being led by the University of Exeter and the survey has been co-designed by carers. It includes questions about your caring role, your physical and mental health, and your relationships with friends and family. It also includes questions about self-harm and thoughts of suicide, but all your answers will be anonymous.


Parents, step-parents, foster parents, kinship carers, and legal guardians are all welcome, as long as you live in England and your child (or at least one of the children you care for) is under 18.

By A.Sansom2 July 22, 2024
The first findings from the Parent Carer Wellbeing Study were published this month. Using data from the survey, we found that more than 40% of parent carers had thought about suicide, with some already having attempted suicide. Although many parent carers had thought about suicide, less than half had ever told anyone they were feeling this way or sought help. One of the main risk factors for suicidal thoughts was feeling trapped in the caring role. The findings show that parent carers think about suicide at much higher rates than the general population and at higher rates that other unpaid carers. They have serious implications for policy and practice, and we are now working closely with policy makers, local authorities, and health & social care professionals to help them understand the challenges parent carers face and develop strategies to mitigate them. The full report is available here . A news article about the finding - including the stories of parent carers who were co-researchers on the study - is available here . In the video below you can hear Associate Professor Siobhan O'Dwyer (who led the study) and two parent carers (who were co-researchers) share their thoughts on the findings. If you're a parent carer in need of urgent support, please contact the Samaritans on 116 123 or text SHOUT to 85258. We are currently preparing a report on the findings from the interviews and hope to share that soon.
By Anna Sansom April 3, 2022
A big 'thank you' to everyone who completed the Parent Carer Wellbeing Study Survey!
By Anna Sansom October 19, 2021
The Health Research Authority (HRA) is committed to enabling and supporting ethical research in the NHS. It protects the rights, safety, dignity and wellbeing of research participants.
By Anna Sansom October 19, 2021
We are excited to announce that our research team has been awarded funding from the National Institute for Health Research (NIHR) Research for Social Care (RfSC) scheme.
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