The Survey has now closed. Please go to the News section to see the results.

WHY IT MATTERS

Watch Anna Walker, one of our parent carer team members, and the study’s Chief Investigator, Dr Siobhan O’Dwyer, talking about why this research matters and to find out more about taking part

The research is being led by the University of Exeter and the survey has been co-designed by parent carers. 

GETTING INVOLVED

Watch Julia Melluish, another of our parent carer team members, share why we need your help.